In the beginning, we were fortunate that the therapists came to our home but once M8 hit 5 that ended. After that it was (and still can be) a constant juggling act to get to where we need to be.
Not only that but therapy can be , well, no "fun". Also, for therapy to be effective it needs to be done every day.
There came a point when I realized that I had to set limits because I just could not do it all. Que "at home" therapy. Home schooling is ideal for this.
I built in many different activities which could be deemed "therapy" but made it a part of our everyday school. Some physical therapy exercise are done while saying times tables.
M8 had a great need for pressure and bouncing so we would play M taco's and roll him in blankets while reading a story.
Since I sew, I was able to make some of the necessary equipment myself. First thing I made was a weighted vest. This gives a child some neural feedback and can be calming. It can also provide a great, non-verbal, signal such as "it is now time to sit in a chair to do something". We only used it when M8 needed to do his handwriting or another (relatively short) seated task. It is important not to use it all the time because it loses it's effectiveness.
Weighted vest, using modleling clay as weights |
Mesh ball bag with ball pit balls. |
M8 getting into his ball bag |
Another thing we began was The listening program a form of auditory therapy. Before beginning this I researched it carefully as there are a lot of dubious things out there. All most everything associated with autism also carries a pretty hefty price tag.
This program has some properly done studies to back up what they said. Also, knowing some of the issues that M8 has, severe perseveration (talking on and on about one subject), sensory seeking behaviors, drawing the same pictures and sensitivity to sounds, I felt that this might be helpful to him.
We began this two years ago. One of the things I noticed during the first 10 week cycle was how his drawing improved (he used more colors and would draw different things. Other than that I didn't think it made much difference. The two times 15 minute break I got while he was listening though was worth it to me!
It was a friend of mine who brought something significant to my attention. "what have you been doing with M"? she asked me one day. What do you mean? I asked. "Well, he isn't climbing all over you anymore and touching everyone". That was when it hit me.
A really annoying set of behaviors that he had (pinching, climbing on me, especially while we were out and the worst grabbing my thumbs and jumping up and down practically pulling them out of the socket) had stopped completely!
Being a scientist by training I had been taking notes and observing M. I noticed that when we got to CD 5 and 6 his behaviors changed. During the second cycle, M8 came down one day when the phone rang and ask: "I heard the phone. Is it for me"? To someone who does not have a child on the spectrum that sentence may seem unimportant but to me it was huge. For the first time M referred to himself as I and me. Also, that he was interested in the phone which had previously terrified him.
Did the Listening program "cure" M's autism. No, but his and our quality of life did improve noticeably.
There are many other little things that I have built into our (school) day that could be termed therapy but I have tried to make them fun. M and I bake cookies together but we do it non-verbally. This helps him really interact with me and promotes a natural eye gaze because he has to look at me to figure out what we are going to do next.
Having a child on the spectrum means that you are in it for the long haul. You have to come up with creative ways to make that journey sustainable for you and your child.
In a future post I'll talk a bit about ways to set up a supportive learning space for all your children.